Community, Presentation at BIL:PIL

I had a great opportunity to speak at BIL:PIL (video link here and also embedded below, thanks WHITECOAT Strategies), the unconference organized by Jonathan Sheffi as the sister conference to TED:MED in San Diego at the end of October 2009. A few weeks before the event I decided to talk without slides, removing a speaker/audience barrier that is present even at an unconference. It was an intense and interesting experience given the events of the day before, but I was thankful to have the opportunity to listen, speak with and be supported by a community of healthcare game changers.

I'm passionate about the topic of communities; I have been a part of online communities for the past 20 years and have built a few different ones that have thrived. It was a pleasure to be able to share my experience and at the same time learn from others. 

Gilles Frydman was there to talk about ACOR, his cancer support communities, sharing the more than 14 years of experience in patient centric communities. Jen McCabe spoke passionately about patient medical data access and healthcare engagement. David Hale gave a great talk on breaking the chain in toxic events. Ash Damle gave us an overview of clinical decision support and where he is taking Medgle. Dr. Val gave us the reasons and data on patient engagement. David Rosenman of the Mayo Clinic spoke on the changes in healthcare. 

Thanks to everyone who came, discussed and shared ideas, it has been great to be part of the conversation- and dare I say? A community.

BIL:PIL 2009 - Chia Hwu from WHITECOAT Strategies on Vimeo.

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Social Media/Healthcare Ideagoras Conference Keynote

The video for the keynote I gave via Skype at the Ideagoras conference is up on Vimeo! I got up at 3 am to deliver this 20 minute keynote to a crowd of ~100, I even had a translator that I didn't know about. 

Some points that I talk about in my keynote:

  1.  I want community and connection after finding out information about a condition that I am diagnosed with. These conversations are happening in communities/patients, they are going to occur with or without the brands involvement. If nothing else, a pharma brand could listen to the feedback that is generated. Brands are held in the minds of the people.
  2.  ACOR, Medgle.com, Medhelp.org as organizations that provide information in the healthcare space.
  3. A community is a garden, not a faucet, you can't turn it on and off- it's more planting seeds and watching it grow.

Thank you Ángel González, for setting up this opportunity to share my experience with healthcare and social media.

 

 

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Final Lunch For Good, I Argue for a Technology Based Solution

It's been a nice series of lunches put together by J.R. Johnson, Chris Heuer, Myles Weissleder and the team at Lunch.com to discuss three topics.

To start off, we discussed "Responsible Participation" (Full Video, I come on at 16:25) and how to encourage conversation. What does it mean to have communities with real names and social contexts. What does it mean to encourage responsible participation? I argue during lunch that participation is not a technology problem so technology can't solve it, that it is much more of a social/societal issue.

In the second installment the topic became, "Promoting Critical Thinking" I again argue that this is not a technology problem but one that is sociological. Our culture does not value critical thinking and the inner life, our constant business and distractions take us away from having enough quiet time to reflect. (Video excerpt)

The third installment was on "Finding Common Ground" and I go towards a technology solution. I think the more we expose the user created content to give context during a conversation, the more human we see "the other". We talk about how there's universal themes of "loving your family" to the mundane, "liking soccer". If we have that information on the sidebar as we are talking about a hot button topic, wouldn't that bring more humanity into the conversation? Would it be harder to objectify the "other" and hate them? If we had technology that could crunch through all of the information and expose the similarities between two people, would that change the conversational tone?

What does this have to do with Community Management? These are all very important- how do we promote conversation? How do we set the tone for the conversation? Having common ground encourages civility and healthy communities. It seems that the Lunch For Good conversations were getting at "How to build healthy thriving communities".

All in all, a great series of lunches. I'm glad that I had the chance to meet everyone and discuss these topics, even if we didn't all agree. Look forward to the next series!

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On the Web Front interview with Chia Hwu and Alex Khomenko of 23andMe

From On The Web Front, episode 16:

In this week’s long overdue episode we are joined by Chia and Alex from 23andMe.com. We chat with Alex and Chia about their startup experiences at 23andMe and at their previous employers. In addition we talk about:

  • The 23andMe Research Revolution which allows a discounted $99 rate for your own genetic testing and health traits
  • Chia’s role as community manager and how tools like Twitter and Facebook can be used to engage your customer and grow your business
  • And why any startup should have good air conditioning

http://www.onthewebfront.com/2009/08/otwf-16-23-and-us/

Check out the other great podcasts that Mike, Gabby, Robert and Stephen do on a semi-regular basis.

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