What a Difference Nine Months Make in Social Media/Healthcare #kpragan

Wanted to give a sense of perspective as we're talking about social media in healthcare.

At the Kaiser Garfield Center again, the first time I was here was last October for my second Healthcamp. The first one was in Toronto barely a month before, a day prior to Medicine 2.0 and I'm amazed by the difference a little more than half a year later makes in the healthcare social media space. 

I'm amazed, now there's @kpthrive, @kpnewscenter, @kpgarfield and most everyone at the Ragan Healthcare Communicator's Summit are on Twitter. There's a lot of talk about multi-channel communications, being authentic, using video, YouTube, Facebook, RSS. 

Healthcare has more than a toe in the water now, excited to be part of what's happening. What can be done to get information out to keep people healthy is just starting. Can't wait to see where we are in another nine months.

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Posted 1 month ago

Health and Disease Information for the Public Made Useful by Being Hyperlocal

Original thoughts posted last night on http://chiah.posterous.com/, edited and reposted here.

There's been a lot of talk about making the online experience hyperlocal, location based services like Foursquare, Gowalla, Brightkite are hot, Facebook, Twitter, Google are all rolling out geolocation features. All of these technologies are available, there's already questions being asked (here and here) in the blogosphere, "How can we use location based services for health?" 

Didn't have a good answer for location and healthcare- until now. It's not the same kind of thinking that other people have been thinking about with a "location based service", but it is important to have a bounded area and a community.

asked via Twitter if there's information out there that would tell me what kinds of communicable diseases are being diagnosed around me because it would be useful information to have. Started thinking about this because I had a fever of unknown origin this past weekend and the symptoms were general- low grade fever, headache, slight weakness, tiny bit of a dry cough- but there was not a good way to know what the likelihood of each possible virus/bacteria/other is.  

In an effort to figure out what diseases was going around, I did a quick little search and turned up an article that there's a 6X increase in whooping cough in the Bay Area and I started thinking, why isn't there a site that lets you search instances of diagnosed cases of communicable diseases based on location. It wouldn't need to be very granular, anything within a 25-50 mile radius of a location that a user specifies would be sufficient. 

Here's the argument that I have for providing this information on a website:

  • Public can use it to see what diseases are prevalent or becoming so and make wise decisions, like avoiding large parties when there's an outbreak of flu.
  • Clinicians could use this information in narrowing down disease possibilities.
  • Public health agencies could get in front of a pandemic.

If we just started with one semi-large local healthcare organization already using electronic health records (EHR's) that would be willing to put out anonymized data with numbers of cases of communicable diseases seen in one of the larger clinics, it would give the community insight into how to keep themselves healthier. Another idea is to take the diseases that are already being tracked by local public health agencies and making those numbers more public. Using the press to get information out seems like an inefficient and haphazard way to let all members of a community (caregivers and the public) know about an outbreak, it would make a lot more sense to make this information more accessible. This way, I can manage my risk by avoiding places or behaviors that up my likelihood of contracting a disease known to be occurring and allow me to make more intelligent decisions regarding care should I become ill.

Forget mining Google searches for flu, let's go with a much more solid number of "How many people were diagnosed with flu in your neighborhood?" Why shouldn't health be hyperlocal? 

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Filed under  //  Healthcare   hyperlocal   Medical   Public health  
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Posted 1 month ago

ad:tech Compendium Blogware Gives Business Blogs Some ROI (and RTE?)

People often wonder, how do we take a corporate blog and tie it to ROI? Is there a RTE (Reason to Exist) for a organization to have a blog?What are the possible metrics that we can tie to blogging efforts and does it actually translate to adding to the bottom line?

It seems that one company at ad:tech had an answer: SEO and winning Google search for key search terms.

Compendium Blogware helps you set up the keywords, shows with a status bar the keyword strength as you’re writing the post, and automatically funnels each post to the search terms that have been specified. What this means is that for a common keyword search, an organization can own the top result for a term like “triggered email marketing”.

As blogging technology matures, we’ll be seeing more and more content management tools in the race for SEO. Video interview below.

Post originally on TechPulse360, edited by JB Su.

 

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Posted 1 month ago

5 Years from Now We'll No Longer be Having Social Media Conferences

During the session How to Leverage Online PR with Social Media at Social Media Strategies Conference in Santa Clara today a radical idea was proposed, that 5 years from now, we'll no longer be having Social Media Conferences, in the same way we don't have email or voicemail discussions, because people understand how to use these tools to communicate.

The issue I have with the statement "People will understand how to use these tools." is social isn't about the tools. Sometimes I feel like a broken record repeating myself when I repeat, "It's not about the tools, the technology or the platform, it's about the people." While I agree that the tools will be ubiquitous the sociological underpinnings of how people are using these tools will still need further study and understanding. 

We are in the early days of this new technology and companies are scrambling to understand how this will change their businesses, I think there will be unintended consequences in the same way that smart phones or email has changed the face of how business is done. What it all still boils down to though, are human beings and how they behave.

Since there isn't a direct link to the session on the conference website, here's the list of panelists and moderator that I copied.

How to Leverage Online PR with Social Media
The session will feature a panel of industry experts sharing their ideas on how to leverage online PR efforts using social media to extend reach and target the right audiences.
Jiyan Wei, Director of Product Management, PRWeb
Greg Jarboe, President, SEO-PR
Louis Gray, Founder, Louisgray.com
Moderator: Tom Foremski, Silicon Valley Watcher

What do you think? Will we still be talking about social 5 years from now?

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Posted 2 months ago

Ad:Tech Advertising on Twitter (repost from TechPulse360)

ad:tech 2010: Advertising on Twitter, the Future is Here for Brands (video)

ad:tech this year was all about social. How to advertise on the social Web effectively and use the power of networks for brands to spread their marketing message.

The most popular and interactive method is through Twitter and there are now two companies in addition to Twitter that will allow a company or organization to sponsor tweets.

Twitter announced last week at Chirp, their first developer conference and on their blog, promoted tweets. Some smaller companies in the Twitter ecosystem have been working on how to get brand messages and ads on users’ streams without being spam like some earlier iterations of advertising on the platform.

140proof and IZEA are two companies at ad:tech that are making it easier to gauge ROI, make sure the campaign is FTC compliant, and targeting the advertising based on semantic analysis. Interestingly, both said at the end of the interview when asked about Twitter’s own foray into advertising that it is a validation of the ad concept on the Twitter platform but that ultimately their offering is slightly different.

In the video below taken by reporter Chia Hwu at the show, CEO of 140proof, Jon Elvekrog talks about how his company allows the ad to be clearly labeled, FTC compliant and is a fully functional tweet, capable of being retweeted, replied to and adds to the conversation. In addition, 140proof gives brands the option to target their audience with their proprietary algorithms.

Check out my easy guide to Twitter for a quick and easy explanation of the basic terms in this post.

Link to original post, written by me, edited and posted by JB Su on TechPulse360 blog.

http://techpulse360.com/2010/04/22/adtech-2010-advertising-tools-for-twitter-...

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Posted 2 months ago

Twitter Basics, the 2 Minute Guide for New Users

Last week Alex Kawas and I taught a workshop on Twitter and blogs to a room full of healthcare professionals at the Center for Health Leaders, based out of UC Berkeley's School of Public Health. I realized about a minute into the workshop that there isn't a explanation of Twitter for the beginner that is easy to understand and just enough to get someone started on the platform but not so information much it's overwhelming. This post is intended to be just enough information for a person who has never used Twitter before to start- and learn along the way.

The way I started thinking about Twitter and a simple tweet was IM'ing or texting a group of people at the same time with the same information. This information could be a sentence or a link. Just start with that IM idea in mind when you are writing your first tweets.

Here's my very quick guide to Twitter and what all the commonly used symbols and characters mean. I've included links to deeper explanations of each term but this is really meant to be a 2 minute guide and not an exhaustive resource.

Definitions:

  • tweet: communication of 140 characters that is sent through the Twitter service
  • follower: someone who opts to receive your tweets
  • follow: you opt to receive their tweets 
  • @<username>: a public reply to a specific person (e.g. @chiah for me), the tweet will show up in search, on the person's Twitter page (www.twitter.com/<username>, so for me, it would be www.twitter.com/chiah). 
  • DM or direct message: a private reply to a specific person, the tweet will not show up in search or on the person's Twitter page. You can only send a DM to someone who is following you and this IS NOT a reciprocal relationship, meaning if I am following @twitter they can send me a DM but since they are not following me, I cannot send @twitter a DM
  • # or hashtag: a tag or keyword that will come up in search. Most often used to label a tweet as belonging to a certain event or topic.
  • desktop or mobile clients: instead of going to twitter.com, you can use other interfaces either on a computer or on a mobile phone to see tweets

These simple terms should be enough to get started tweeting, for more detailed guides, Mashable has quite a few that will keep you busy for hours. 

 

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Posted 3 months ago

Personalized Genomics Panel at Jewish Community Foundation in Palo Alto

Waiting for full sequence?

 Photo credit: Julie Blaustein

Last night I had the chance to cover a Personal Genomics: What Consumers and Investors Want to Know panel at the Jewish Community Federation. You can watch the entire conversation here: http://www.livestream.com/sfjcf

Panelists:
Michael Goldberg, Partner, Mohr Davidow Ventures
David MagnusPhD, Chair, Program in Regenerative Medicine Sub-Committee on Bioethics and Conflict of Interest, Stanford University
Hugh Rienhoff, MD, Founder of MyDaughtersDNA.org 
Ashley Gould, General Counsel, 23andMe
Moderator:
Robert Blum, President and Chief Executive Officer, Cytokinetics and Chair, Business Leadership Council of the Jewish Community Federation

  • Michael Goldberg stated the businesses Mohr Davidow are involved with are physician mediated, if not, then genetic counselors help interpret the results. David Magnus brought up ethical issues such as data ownership, clinical utility of SNP tests. 
  • Hugh Rienhof gave us an update on his quest to find a diagnosis for his daughter by sequencing genes: hers, their family and other volunteers. 
  • Ashley Gould said 23andMe is not interested in the technology but rather the genetic data and data interpretation with an emphasis on research to make personalized medicine a reality. 
  • David gave the strongest opinion, declaring that the data from Navigenics and 23andMe as clinically useless since it's "just a drop in the bucket." Ashley seconded David's opinion, saying for the second time in the evening that data from 23andMe is not meant to be used for clinically relevant health decisions and encouraged anyone with concerns to consult a doctor.

The panel was in agreement that full sequencing is the future, it's not a matter of how but rather of when. Michael Goldberg addressed the question of how to make money from this new world by ending with, "We want to make sure that we don't get ahead of what society is ready for." The take home from the panel is "Yes, full sequence is the next step!", answering the question at the beginning of this post, "Waiting for full sequence?" 

On a bigger level though, a small instantaneous community sprang up because of our shared interest in personal genomics. Though this event happened in Palo Alto, CA in a space that is constrained to a few hundred people in the auditorium, technology has made it possible to have almost instantaneous communications. We had real-time discussions over Twitter and in the chatroom from people thousands of miles away and internationally. Just glancing over who I talked to, the group consisted of a Health 2.0 activist, a government employee, a lawyer specializing in genetics and a human/computer interaction technologist. The panelists came to this event with their lens: Michael because he invests in the space, Hugh because of his daughter, David for the societal issues personalized genomics brings up and Ashley because of her father. The people following the live stream and on Twitter also came for their own reasons, one person because he is adopted and has no family history to rely on at the doctor's office, another because of her interest in patient advocacy. I'm sure everyone in the audience had their own reasons for attending, as many as the number of people who were listening. This event brought people with a common interest together and even if none of us ever meet again, new social technology made is possible and easy to connect and reconnect. The next challenging facing us is how we use this new socialized web to move whatever needles we choose. 

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Posted 5 months ago

Interview with Tim Thomas @imstarboard of Local Motors @localmotors about Community and Real Products

 

I had the chance to ask a few questions of Tim Thomas, CIO of Local Motors Inc., a fascinating company at the edge of crowdsourcing, design and real production products. There is a thriving community of designers and car enthusiasts involved with the company.

The Rally Fighter Tour stopped off in San Francisco and I had a chance to see CEO Jay Rogers on a panel speaking on how the new social technologies can lead to real world products for Social Media Week 2010.

According to Tim, the beginnings of a community started with a placeholder website that interested people could join an email list and be notified when the site officially launched. The community started to build on its own when the website launched and members could enter a series of competitions- they could upload images and share ideas. Now Local Motors Website is now a community of transportation designers and enthusiasts can gather, share ideas and get feedback. With approximately 5000 active members, there is a vibrant community that gather online and offline.

Local motors invited other car and design communities to participate in competitions. They have sent representatives to American transportation design schools, brought the Rally Fighter and involved the students. In addition, they also have other offline events where they invite local enthusiasts from Rhode Island, Connecticut to the shop for "Burgers and Welding".

In my experience, these real life events are key to creating a more significant community. Add that key component to YouTube, Flickr, website, Facebook and Twitter presence, this is one company that is doing it right.

Here's the interview with Tim:

1. Tell us a little about the philosophy behind Local Motors.

Local Motors' mission is to lead the next generation of automotive manufacturing, design, and technology in order to revolutionize the industry with game-changing efficient vehicles and an unprecedented standard of customer service.  In order to accomplish this, we have a high degree of interaction and integration with our community.  It is our philosophy to provide an open, collaborative environment where there is mutual symbiosis between Local Motors and our community.  In our open source model, transportation designers, engineers and enthusiasts can share their concepts and designs for feedback, for collaborating on designs with other members, and for the opportunity for selected designs to be built by Local Motors.  Conversely, Local Motors makes our our technical vehicle specifications and open-source chassis data available to specialty equipment manufacturers so they can manufacture and sell custom parts to spec for our vehicles. 

Our product development process is also open, displaying revisions and milestones as they occur on our website.  This is the absolute opposite of traditional automotive manufacturers that "take a few high-profile designers behind locked doors, and 5 years later pull off the sheet to show the public what they can all buy".  We are as involved with our community as they are with us.  We educate them and celebrate their progress and their successes both on and off of our website, and they contribute their perspectives and ideas with each other, and with our product.  Beyond that, future customers contribute their ideas and suggestions in the vehicle development process, helping shape the product they are going to buy.  It's a win-win situation all around.

2. How much of this came out of the DIY movement?

The Local Motors Vehicle Build experience is one huge differentiator that Local Motors provides our customers, however Local Motors did not come out of a DIY movement.  DIY is not new - I watched my father build a heathkit stereo in the 1960s.  That said, DIY has recently significantly increased in popularity, partially due to the emergence of businesses that make small-scale customized manufacturing available to individuals and small businesses.  Local Motors in particular does have significant domain knowledge of DIY.  Our engineers have designed and manufactured vehicles at Factory Five Racing, a very successful DIY-racecar manufacturer that engineers their vehicles from the ground up.

The DIY movement is a huge inspiration.  Whether you're building cars, airplanes, computers or radios - if you build it yourself, you care more.  You learn more. This experience is essential to building not only relationships but a sustainable process; if you build a Rally Fighter with your children, chances are you will want to keep it forever.  

3. How many people were involved initially? Now?

The idea began to foster while Jay Rogers, CEO, was a Marine in Iraq.  Jay had always loved cars and was hugely influenced by his grandfather who was owner of Indian Motorcycles.  It started with one person wanting to impact the American car industry in a positive way; cars are one of the largest end uses of oil, and if Jay could reduce our need for foreign oil, reduce the need for military solutions, while building cars he loved - that's what he wanted to do.  So he went to Harvard Business School, met his co-founder Jeff Jones and set the business plan for Local Motors. 

The initial efforts of the business were to create a product plan for the first vehicle while simultaneously building out our website in order to grow our community.  At that point there was Jay, the CEO, Karin Ostebo Finance/HR/Office Manger, me and a developer named Andy Cronk building the website, 2 vehicle engineers Mike Pisani and Dave Riha and one Community Evangelist, Ariel Ferreira.  The community grew slowly and has since grown to over 5,000 members from around the globe.  When the Rally Fighter was chosen for development we hired full time designers and now work with two, Aurel Francois and Nyko De Peyer.  Both Aurel and Nyko were hired from the community.  We also work with an excellent team of contractors who help with everything from fabrication and modeling to video production. 

4. What do you think was the turning point (if there was one), where you, as an organization realized "Wow, this community sourced design for real world products is working!"

We have always been confident that it would work.  The turning point you ask about came for other people - the press, skeptics, our community members who wanted to participate in designing a car that would actually be built... they mostly seemed to be cautiously optimistic.  The biggest turning point has been the physical proof - that we actually did build exactly what we promised, on target and on budget.  That and about 60 Rally Fighters have been reserved to date! 

5. You have a great social media presence, I've found you on Twitter, Facebook, Flickr, YouTube, your own website- could you tell us a little more about the goals of putting all this great content out and how you chose the tools?

Really we want to share as much as possible to increase involvement and feedback from our community.  We look at community in a holistic way; Facebook, Twitter, Flickr, and YouTube all help to direct traffic and participation to local-motors.com where people can vote and help design the cars they love. 

As you point out, it is our strategy to maintain a presence where our community and fans can be found.  This is especially important these days, because we now live in a world where people are often likely to seek product advice from each other rather than base purchasing decisions on brand loyalty.  Sites like Facebook and Youtube provide access to both trusted peers and consensus opinions of "the masses", two important sources of influence over present day consumers.  As a result, this is one reason we are committed to providing content on sites like Facebook, Youtube and Flickr.  Another reason is that with the increasing viewership and viral nature of these sites, this is a great way to introduce our products and company to untapped audiences.  Ultimately, those who are interested in learning more, want to get involved with our collaborative experience or who want to become customers will come to our website or visit us in person.

The bulk of our exposure, however, seems to be growing outside of these types of social media sites.  We are getting an increasing amount of great media coverage by sources like Wired (http://www.wired.com/magazine/2010/01/ff_newrevolution/) and Jalopnik (http://jalopnik.com/5398864/local-motors-rally-fighter-the-first+ever-creative-commons-car) for example.  Our CEO, Jay Rogers, is also regularly asked to participate in highly visible business and social media conferences as a panelist.  Additionally, a significant amount of exposure comes from physical exposure.  Our Rally Fighter debuted at the SEMA auto show in Las Vegas, and we have taken it to several off-road rally races, and are currently taking it to the community on a national tour (http://www.local-motors.com/static.php?p=RFTour) so that people can kick the tires and talk to us in person, something we feel is even more powerful than on-line exposure in building excitement and trust.

But to finish your answer, we are always exploring new tools, usually free, that will simplify the dissemination of content.  We use free tools like Seesmic desktop, Tweetdeck and CoTweet to make sure we keep up with Twitter.  We are now using Pingg to schedule events because if it's integration to many resources such as Facebook and Google Calendar.  Shortly we will release Facebook Connect on our website in order to leverage Facebook's social graph and to empower our members to flow content in both directions between Facebook and our website.

We also build some of what we need.  For example, we use Google Apps because it works for us (and it's also free).  As a result, we can build a tour calendar for the Rally Fighter in Google, entering locations and times into the calendar, but then we built an interface between them so that the calendar automatically feeds Google Maps, pinpointing the locations of the events.  We have also integrated the conversation on our website into a twitter account @lm_car_chat, and we have integrated this into bit.ly so that each tweet links back to that discussion on our website, and we display #rallyfighter tweets on the tour page.  Any fresh content that we can automate like this is a huge time and cost savings.

 6. How many people do you have creating content for the social media/community sites? 

Internally, I would say that 5 of us are actively contributing content to our website and social media sites, and we also have 4 people from a partner firm called Kinetic Fin that contributes as well.  There are 3 people who are tasked with updating each of the sites, but this only amounts to a relatively small portion of their day.  Everyone on our team can be reached via Local Motors, and several via Facebook & Twitter.  

Lucky for us, our story is one that people want to tell, and as a result, most of the content is created by bloggers, reporters and our community members.  

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Posted 5 months ago

Community, Presentation at BIL:PIL

I had a great opportunity to speak at BIL:PIL (video link here and also embedded below, thanks WHITECOAT Strategies), the unconference organized by Jonathan Sheffi as the sister conference to TED:MED in San Diego at the end of October 2009. A few weeks before the event I decided to talk without slides, removing a speaker/audience barrier that is present even at an unconference. It was an intense and interesting experience given the events of the day before, but I was thankful to have the opportunity to listen, speak with and be supported by a community of healthcare game changers.

I'm passionate about the topic of communities; I have been a part of online communities for the past 20 years and have built a few different ones that have thrived. It was a pleasure to be able to share my experience and at the same time learn from others. 

Gilles Frydman was there to talk about ACOR, his cancer support communities, sharing the more than 14 years of experience in patient centric communities. Jen McCabe spoke passionately about patient medical data access and healthcare engagement. David Hale gave a great talk on breaking the chain in toxic events. Ash Damle gave us an overview of clinical decision support and where he is taking Medgle. Dr. Val gave us the reasons and data on patient engagement. David Rosenman of the Mayo Clinic spoke on the changes in healthcare. 

Thanks to everyone who came, discussed and shared ideas, it has been great to be part of the conversation- and dare I say? A community.

BIL:PIL 2009 - Chia Hwu from WHITECOAT Strategies on Vimeo.

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Posted 6 months ago

Social Media/Healthcare Ideagoras Conference Keynote

The video for the keynote I gave via Skype at the Ideagoras conference is up on Vimeo! I got up at 3 am to deliver this 20 minute keynote to a crowd of ~100, I even had a translator that I didn't know about. 

Some points that I talk about in my keynote:

  1.  I want community and connection after finding out information about a condition that I am diagnosed with. These conversations are happening in communities/patients, they are going to occur with or without the brands involvement. If nothing else, a pharma brand could listen to the feedback that is generated. Brands are held in the minds of the people.
  2.  ACOR, Medgle.com, Medhelp.org as organizations that provide information in the healthcare space.
  3. A community is a garden, not a faucet, you can't turn it on and off- it's more planting seeds and watching it grow.

Thank you Ángel González, for setting up this opportunity to share my experience with healthcare and social media.

 

 

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Filed under  //  Chia speaking   Community   Healthcare   Social Media  
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Posted 7 months ago